Support & Resources
Patient Support Programs
To learn more about our patient support program for Carbaglu®, Cystadane®, Cystadrops®, Ledaga®, Signifor® and Signifor LAR®, you may contact us at:
Tel: 1-833-831-2068
Fax: 1-888-221-2505
RecordatiPSP@innomar-strategies.com
The Recordati Rare Diseases Patient Support Program Helps With:
Insurance Confirmation
Confirming if insurance companies will cover medication costs and understanding insurance plan benefits.
Approval Checks
Working with doctors' offices and insurance companies if additional approvals are needed.
Medication Q&A
Answering any questions related to accessing medications.
Coverage Research
Researching alternative forms of medication coverage, or getting referrals to other possible sources of funding.
Links to Information on Rare Diseases
Canadian Association for Porphyria
The Canadian Association for Porphyria is dedicated to promoting health by providing individuals with porphyria access to related counselling, information, and group support programs.
Global Genes
Global Genes is a leading rare disease advocacy organization. Their mission is to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
The Garrod Association
The Garrod Association is a permanent Canadian body at the national level for the coordination of the management of inherited metabolic disorders.
Canadian Organization for Rare Disorders
CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.
National Urea Cycle Disorders Foundation
The NUCDF is dedicated to the identification, treatment and cure of urea cycle disorders.
Canadian College of Medical Geneticists
CCMG is a national Canadian organization that serves its members, governments and the public by certifying individuals, establishing standards, providing education, and informing public policy.
Regroupement Québécois des Maladies Orphelines
Through its Center for Information and Resources on Rare Diseases, RQMO provides information and support to health professionals and to patients with rare and orphan diseases and their families.